Arachnoiditis Unfiltered is a YouTube-based podcast that offers raw, honest conversations about living with arachnoiditis and navigating chronic pain. Hosted by Steve Lovelace and Sara Lewis, the show focuses on unfiltered personal experiences, real life challenges, and the emotional and physical realities of a rare, often misunderstood condition. It blends long-form discussions with more concise shorts to reach and support a broader audience.
The channel’s content is shared in rare disease and chronic pain communities to foster connection, raise awareness, and advocate for better understanding of arachnoiditis. With several videos so far, the first remains the most viewed, helping drive meaningful engagement and over 600 watch hours across the channel.
Core themes include:
Personal stories and lived experiences with arachnoiditisCoping strategies for chronic pain and daily lifeCommunity connection and validation for others with similar conditionsAdvocacy, awareness, and education on rare disease challenges
Goals for the podcast:
Establish a consistent release scheduleFeature strong, engaging guestsGrow social media presenceRefine the show’s formatAchieve long-term milestones like 1,000 subscribers, monetization, and merchandise offerings
Overall, Arachnoiditis Unfiltered is a supportive, authentic space where listeners can feel seen and understood in their rare pain journeys.
